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Sunday, March 23, 2008

Bipolar Testing Gone Mad


When it comes to knowing what someone that is diagnosed with Bipolar disorder is all about I think I have a front row seat on the topic. By no means am I any kind of medical doctor or someone with fifteen letters after their name with advanced degrees in mental health education. I’m one of two parents that have faced it for years with one of our children and it is not an overnight diagnosis. Matter of fact, technically you can not be diagnosed bipolar until you are an adult. But Bipolar conditions in people can be narrowed down and treated with the right professional medical care and tested medications.

One of the things that I am certain of is that there is not one single doctor out there that will overwhelmingly say that any individual is bipolar even after several visits with the patient. Apparently, all of the medical doctors, counselors, psychiatric health care workers are out of a job due to a spit in a cup test that nails a person as bipolar. I can’t make this stuff up and MSNBC has this to say on it…

Experts troubled by at-home bipolar gene tests

Many such products sold online with almost no government oversight

Associated Press
updated 2:23 p.m. ET, Sun., March. 23, 2008

SAN DIEGO - Dr. John Kelsoe has spent his career trying to identify the biological roots of bipolar disorder. In December, he announced he had discovered several gene mutations closely tied to the disease, also known as manic depression.

Then Kelsoe, a prominent psychiatric geneticist at the University of California, San Diego, did something provocative for the buttoned-down world of academic medical research: He began selling bipolar genetic tests straight to the public over the Internet last month for $399.

His company, La Jolla-based Psynomics, joins a legion of startups racing to exploit the boom in research connecting genetic variations to a host of health conditions. More than 1,000 at-home gene tests have burst onto the market in the past few years.

The proliferation of these tests troubles many public health officials, medical ethicists and doctors. The tests receive almost no government oversight, even though many of them are being sold as tools for making serious medical decisions.

Health experts worry that many of these products are built on thin data and are preying on individuals’ deepest anxieties.

“People are always rushing to the market on the basis of one or two studies,” said Dr. Muin Khoury, director of the National Office of Public Health Genomics at the Centers for Disease Control and Prevention. “We have very little evidence that telling people their genetic information is going to make any difference.”

Tests have become available claiming to help predict and diagnose everything from serious illnesses like cancer and Alzheimer’s to athletic ability and a person’s ideal diet. Psynomics’ offering is one of the first psychiatric gene tests on the market.
- MSNBC

First off, the human mind is a very complex machine that will never be fully understood even with thousands of years of research. Granted that great progress has been made in the last forty years but that progress is only the very tip top of the iceberg.

Having been through the long trials of a child with mental health issues it is not anything that you would ever want to go through. It’s painful, it’s full of very difficult decisions, and it’s full of many highs and many lows. There is no middle ground when it comes to being the parent of someone that is probably Bipolar. All of the heartaches faced are from the person afflicted with the diagnosis that is not guaranteed and the ones that love them without question. One thing I am certain of is that many well educated people saw my child, diagnosed approximate disorders, missed the medications she needed and missed the overall picture. Standing back after years, if you picked apart the summation of each doctor and psychiatrist she saw you might have the overall picture but it is still a guess. Even to this very day it is a mystery so spitting in a cup is not the tell all diagnosis by any means.

One thing I am certain of is that you can not know what a persons mind is truly all about completely. Spitting in a cup and mailing the results back to your doctor is only one possible piece to the big picture that is the human mind. Our human mind is a jigsaw puzzle of the magnitude that if you spread all of the pieces out end to end it would take millions of light years to reach the end of it and that would only be the first we would ever understand. Assembling the pieces is a challenge we might never find the solution too when all of the pieces can change shape at any point in time. This kind of test is not cast in stone result positive of Bipolar, Alzheimer’s, Dementia or any other mind altering medical condition.

These conditions of the mind are not like being pregnant that chemically changes the entire human bodies chemistry. Don’t ever think that you can diagnose a child or anyone simply by spitting in a cup and sending it off to some lab that has unknown conditions for testing your samples. That is where the dangers of this miss appropriated use of a general knowledge of the bodies DNA and chemical properties can be greatly mistreated.

One of the things that scares me about this type of alleged science is the simple fact that is not regulated or perfected and the possible abuse that it will cast forth on millions of innocent people will never be known. I can literally picture someone thinking their child might be bipolar and rather than spend the time with therapists and doctors they choose the unproven method of spitting in a cup and it becomes biblical results to the parents. Same thing goes for someone that thinks they might have Alzheimer’s disease and spitting in a cup with positive results ends up destroying the future they had as a person.

You can never replace the serious education it takes to actually treat someone with Bipolar conditions. Many of the drugs needed to help someone with symptom’s similar to bipolar have been tested and proven to work for years before actually on the market. In some cases it could be as simple as vitamin deficiencies to help the patient brain chemistry and in others it may take a combination of prescription drugs but being Bipolar is treatable.

What I truly find ironic about this testing by spitting in a cup will be substituted by many as real health care by people without health insurance. That is how this story and diagnosing anyone with a mental health issue will find the abuse of a very willing open unregulated market that does not care what you do with the results as long as your check clears.

Thank you UMASS Medical and Transitions for stabilizing what was once a child diagnosed as possibly Bipolar. The future is far better than the past and true mental health professionals made that possible.

Papamoka

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Saturday, June 02, 2007

HooRAHHH! Here is your Diploma...NOT!


Picture Courtesy of Galesburg High School web site

No matter how proud you are of your son or daughter for making it all the way to finally getting that diploma there is always just one more road block. Remember those two finger claps of years gone by while you attended school? Anything louder than that during your high school graduation ceremony and they pull your diploma in Galesburg, IL!

I could not make this up if I wanted too but the New York Times has this to say about it...

Diplomas Denied Over Graduation Cheers
By THE ASSOCIATED PRESS
Published: June 3, 2007

GALESBURG, Ill., June 2 — A high school that had warned against undignified behavior at its graduation ceremony denied diplomas to five students after enthusiastic friends or family members cheered for them during the commencement program.

On May 27, Galesburg High School students and their parents were asked to sign a contract promising to act in dignified way. Violators were warned they could be denied their diplomas and barred from an after-graduation party.

Many schools ask spectators to hold applause and cheers until the ceremonies end but few rigidly enforce the policy.

“It was like one of the worst days of my life,” said Caisha Gayles, one of the five students, who officially graduated, but does not have her diploma to frame and hang on her wall. “You walk across the stage and then you can’t get your diploma because of other people cheering for you. It was devastating.”

The school said the five students can still get their diplomas by completing eight hours of public service, answering phones, sorting books or doing other work for the district.

School officials in Galesburg, a city of 34,000 in northwestern Illinois, said the policy was adopted after hoots, hollers and even air horns drowned out much of the ceremony in 2005 and nearly touched off fights in the audience when the unruly were asked to quiet down.
- New York Times

Contrary to popular belief, not all kids have a “Disney Channel Sitcom” educational experience. Yes, some children have a very hard time and for the ones that stick it through with those D grades it makes their friends and family damn proud.

If “Buffy and Biff” who sailed through with straight A’s parents want to do the two finger clap then you go right the hell ahead. If my kid struggled all along but stuck with it then I will cheer loud and proud! My kid just completed the toughest event of their young life and getting that High School Diploma is something to be very thankful for. If this were a sporting event then my child just made the first cut and made the team.

Who the hell is that anal among parents that doesn’t see the trees for the forest? Who amongst educators does not get the happiness of this lifetime achievement? Getting that diploma is the true beginning from childhood to being a functioning adult.

Would it hurt the ceremony to pause a damn minute or two to give each of the kids the encouragement they deserve from their families and friends while accepting the award of twelve years or more of continued determination to learn and make the grade. In a society that constantly bitches about kids dropping out, these folks are screwing them over just one last time simply because they hold the piece of paper that states to our society that you made the cut.

How is the kid getting the diploma responsible for this? Well, if you think about it they are. Yup, if gramps or grams with all the arthritis and bad hips gets to excited then pull that kids diploma. Mom or Dad that worked several jobs to pay for tutors and saved for college and a better future should be silent. Parents are to be seen and not heard from.

NOT!

We are just going to put this one in the idiot box and forward it to every blog we can think of. Life is hard enough for our young adults and then you get this educational Nazi idiocy movement. I refuse to “Achtung Mine Furor” on this one.

Some people are just idiots (Terminology changed due to younger readers) because they have a position that lets them be that way. Give you a clue, there are bigger idiots (Terminology changed due to younger readers) like me that care and City Councilors that care even more. Especially, when nice folks that are not idiots (Terminolgy...you know the drill) reading and idiot blog like mine simply email the real folks in charge to complain and demand justice… Hint, hint, hint…

If this post inspired you or ticked you off, please forward this post to someone else that is an idiot...

Papamoka

GALESBURG, Illinois official municipal site... hint, hint, hint...

UPDATE: The school has given the kids their diplomas.

Cross posted at Bring It ON!

Bring it On!

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Wednesday, May 09, 2007

Bush Morals on Stem Cell Research…


Cross posted at Bring IT ON!
Where President Bush failed to act then the States and the Governors have taken up the charge where it concerns Stem Cell Research. Once more on yet another critical issue to our nation the President and his lack of vision are being trampled on by yet one more Governor that knows where the future of science is. President Bush claims to be against embryonic stem cell research for moral reasons and yet he would have no problem incinerating those same embryos as medical waste that is at the very heart of this heated discussion. Donated embryos without a womb or hope of a womb will degrade over time and when that time comes they simply light a match and thus end the discussion and his argument of higher principles and personal morals on life being sacred.

What simply amazes me to no end is that the states and the Governors of our nation are showing what true leadership is when it comes to medical science. The few Governors that have chosen to take on stem cell research are truly the people that deserve our nations and the world’s gratitude. George Bush is the oxymoron President that will protect and embryo in a cellular state with no chance of survival outside of a womb and yet he will send our young men and woman to fight a war that his administration made up? If that doesn’t make you go Hmmm then I don’t know what will?

Over at the New York Times they have this great piece on Governor Deval Patrick and his commitment to medical science …

Massachusetts Proposes Stem Cell Research Grants
By PAM BELLUCK
Published: May 9, 2007

BOSTON, May 8 — Gov. Deval Patrick on Tuesday unveiled a $1.25 billion proposal intended to help the state maintain its status as a pre-eminent place for stem cell research and other life sciences.

The money would provide grants for university and hospital scientists, establish special research centers to make their work faster and more efficient, and train workers for biotechnology businesses.

It would also establish the first stem cell bank, a repository of all the stem cell lines created in Massachusetts laboratories, which would serve as a kind of stem cell lending library to scientists around the world.

“In many ways the health of this industry and the health of our society are very closely linked,” Mr. Patrick said at an international biotechnology convention here, where he announced the plan. “That’s why we will not rest on our laurels.”

Mr. Patrick’s plan involves $1 billion in state money over 10 years, some borrowed through bond issues, plus $250 million in matching money from private business.

Massachusetts is home to some of the most advanced research in stem cells and other life sciences, including the work of Craig C. Mello, a University of Massachusetts scientist who shared the 2006 Nobel Prize in Medicine for his work on silencing the effect of certain genes, which could lead to treatment of diabetes, AIDS and Alzheimer’s disease. Scientists at Harvard and other Massachusetts research centers have created more than 30 new lines of embryonic stem cells, more than researchers in other states.

Other states have proposed committing money to the field. Among them are California, which approved a $3 billion program; New Jersey, which has proposed $270 million; and New York, where Gov. Eliot Spitzer has proposed $1 billion for stem cell research.

These states are all seeking ways to get around the Bush administration’s restrictions on federal financing for embryonic stem cell research, which were imposed because President Bush objects to the necessity of destroying human embryos in order to create the stem cells.
– New York Times

America has to continue reaching for the outer limits of science and beyond not simply because we can but that we have to if we are going to continue as the leaders of the free world. We can not sit idly by while our families are suffering and dying from diseases that could possibly be cured if the research is simply started today. This research that could take decades may not save you from your terminal illness today but it just might save your grand child or great grand child.

There is another thought that was running through my head while reading this article and that was the sense of vision and long term job growth that this technology will bring to the states that dare to dream and fund it now. Back in the early seventies and eighties Massachusetts was the hub of computer technology companies and an industry leader in computer sciences. Companies like Wang, Digital, Data General, Prime One were just a few of the big players in that market and yet today they are all gone. Computer systems and parts and everything to do with building computers for the most part are now feeding families overseas now. Then you have to think about Detroit and what the people there are going to do now that their future is in question? Just knowing that the world’s largest auto maker is now in Japan has to send a shiver up your spine.

Embracing stem cell research will ensure America and Massachusetts is a player in the higher paid job markets ten, twenty and thirty years down the road. Some folks call it Progressive Government. I just call it smart government.

Governors like Deval Patrick know that you have to keep moving forward and embracing new ideas and new sciences to keep the good paying jobs in his state and help emerging opportunities to reach a bountiful potential. It is the job of the Governor of every state to make sure that the jobs that pay well will be there if not in his or her term then ten or twenty years down the road.

I’m trying to think of any science or technology that would promote a future of great jobs at descent salaries other than big oil that this President has embraced. Nope, I got nothing. Can you think of one?

Papamoka
Cross Posted at Bring It ON!

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